Postby true_noir_chloe » Thu May 26, 2005 9:45 pm
My son has struggled with depression and other comorbid difficulties that go with Tourette Syndrome for his whole life. Recently it has gotten much, much worse because of the teen years.
He was born with severe Tourette Syndrome. Just last month his tics were so bad, it caused him gastrointestinal pain, because of all the jerking and yelling and barking at the top of his lungs (this goes on every minute to three minutes, and sometimes every 30 seconds).
It was a very harsh and draining month on him physically. Imagine someone yanking your spinal chord down and up all the way to the base of your head day and night. That is how it is when he has harsh ticcing. It brings about headaches, jaw pain, throat pain, which is made raw from the coughing, yelling and barking, and this time it triggered some bad internal problems, of which we now have our new medical insurance cards and can take him to be checked out by a GI specialist.
The thing about TS is that it waxes and wanes, and last month was the worse time for him. Well, now he is calming down on the tics a bit and his depression has taken over. Every little thing sets him into a deep depression or enflamed anger, and he doesn't want to take his anti-depression medication because frankly, it makes him feel psychotic. His neurologist says he is hard to medicate, so nothing seems to work and once it does work, it only works for a month and then has a reverse side effect because his body gets accustomed to it. We've tried Prozac, Celexa and another I can't remember. We don't want to go with anything stronger, because even the mild Celexa became a time bomb in his system.
Anger is the biggest problem with my son. Please pray for him because it consumes him so suddenly. This is unfortunately, very common with his TS.
I ask you also pray for his little sister, Chibs here, who has been a wonderful sister to him. Believe me, he has matured greatly, but through the teen years, when hormones and all the other stuff is uncontrollable, that part of his brain, since he has TS, is a mess. Chibs has been great and she has been a blessing to him. ^____^ Elric has also been great as he matures, being able to stop himself more often and surprising us with wonderful praise and concern. I know eventually he will break out of the teen years and the hormones won't be such a horrible trigger in his brain.
Some of you might think, well why doesn't he just control himself? Well, at 22 or 30 he probably will be able to because he won't have the stress of puberty, but as you all know this time brings about the most emotional outbreaks as it is, let alone with a severe neurological disorder to add to it. His ceratonin levels are already all messed up and once he turned 12 and started to enter the teen years, everything went downhill for him, and his emotions are dangling on a thin wire that's been cut.
I'm really opening up here and I hate to do this, because this is a private matter, but Josh has asked me for prayer, because he knows he can't do this alone anymore. He knows that God can help and so he gave me the go ahead to start a prayer thread for him.
I love my son so much and he is a wonderfully tender young man, who has just had a life that has been filled with constant disappointment, pain and the added TS, OCD, depression and every other thing he feels cursed with.
I'm sorry for those he has possibly hurt along the way and just ask you all to pray for him, because he is always hurting. T_T Our family just needs your prayers right now. Thank you.
[size=84][color=seagreen]YOU SEE
You see into the deepest part of me ---
beyond the fog I hide behind.
You cast your light upon the shadows
that stretch like cobwebs in my mind.
You ease the pain when I am hurting,
and morbid visions from my past
pierce into the realm of Reason
as though I danced on blades of glass.
You grant me strength when I have fallen
and, once again, I've lost my way.
You take my hand in Yours and lead me
into the promise of a brand new day.
You bring order to all my chaos,
yet set my well-laid plans awry.
You place me on a firm foundation ---
then give me wings so I can fly.
You sand away my roughened edges
and polish all the dullest parts
until I stand before Your presence...
a newly-sculpted work of art.
You see into the heart within me,
right through my motives and selfish will.
And yet, in spite of all You see
You say You love me even still.
~by D.M.~
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