Prayer request for a diagnosis.
PostPosted: Tue Jun 30, 2009 11:22 am
I'm not used to asking for this, but it's high time I start.
The short form is, I have now been ill for over thirty years, continuously. I've gone through a dozen doctors and nearly as many diagnoses. Starting this week, I am now waiting for the first test results of yet another doctor, this time a Rheumatologist. In the earlier years, it slowed me down a lot, but I was able to muddle through, but things have been getting progressively worse lately.
I'll spare you the details, as many of them are somewhat icky, but suffice to say if you combine the symptoms of Irritable Bowel Disease with the symptoms of Fibromyalgia, you've got a pretty close match.
For the last several years, I've been under the diagnosis of "Crohn's Disease", but my Gastroenterologist admits, I'm 'completely atypical'. In otherwords, it only looks like Crohn's if he doesn't look very closely. I don't respond to any of the medicines for Crohn's, and some of them have actually made me worse.
Over the years I have gotten progressively weaker. I know this is normal, but in ten years my usual afterwork and weekend activities have gone from sailing, woodworking, fishing and soccer to laying flat on my back in bed. Frankly, I have trouble keeping up with my seventy-nine-year-old father at this point. I don't do much anymore except go to work.
Especially frustrating is the projects that have gone on hold. One of them is a collaboration I was doing with Esoteric, another member here, and I'm embarrassed to admit, we could wrap this up if I only put in about a week of work on it, but I don't even have that to give.
So, I guess a prayer for Diagnosis is what I would like. Just for once, I would like to finally know what is actually wrong with me.
The short form is, I have now been ill for over thirty years, continuously. I've gone through a dozen doctors and nearly as many diagnoses. Starting this week, I am now waiting for the first test results of yet another doctor, this time a Rheumatologist. In the earlier years, it slowed me down a lot, but I was able to muddle through, but things have been getting progressively worse lately.
I'll spare you the details, as many of them are somewhat icky, but suffice to say if you combine the symptoms of Irritable Bowel Disease with the symptoms of Fibromyalgia, you've got a pretty close match.
For the last several years, I've been under the diagnosis of "Crohn's Disease", but my Gastroenterologist admits, I'm 'completely atypical'. In otherwords, it only looks like Crohn's if he doesn't look very closely. I don't respond to any of the medicines for Crohn's, and some of them have actually made me worse.
Over the years I have gotten progressively weaker. I know this is normal, but in ten years my usual afterwork and weekend activities have gone from sailing, woodworking, fishing and soccer to laying flat on my back in bed. Frankly, I have trouble keeping up with my seventy-nine-year-old father at this point. I don't do much anymore except go to work.
Especially frustrating is the projects that have gone on hold. One of them is a collaboration I was doing with Esoteric, another member here, and I'm embarrassed to admit, we could wrap this up if I only put in about a week of work on it, but I don't even have that to give.
So, I guess a prayer for Diagnosis is what I would like. Just for once, I would like to finally know what is actually wrong with me.