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Please pray for my son, Elric_kun

PostPosted: Thu May 26, 2005 9:45 pm
by true_noir_chloe
My son has struggled with depression and other comorbid difficulties that go with Tourette Syndrome for his whole life. Recently it has gotten much, much worse because of the teen years.

He was born with severe Tourette Syndrome. Just last month his tics were so bad, it caused him gastrointestinal pain, because of all the jerking and yelling and barking at the top of his lungs (this goes on every minute to three minutes, and sometimes every 30 seconds).

It was a very harsh and draining month on him physically. Imagine someone yanking your spinal chord down and up all the way to the base of your head day and night. That is how it is when he has harsh ticcing. It brings about headaches, jaw pain, throat pain, which is made raw from the coughing, yelling and barking, and this time it triggered some bad internal problems, of which we now have our new medical insurance cards and can take him to be checked out by a GI specialist.

The thing about TS is that it waxes and wanes, and last month was the worse time for him. Well, now he is calming down on the tics a bit and his depression has taken over. Every little thing sets him into a deep depression or enflamed anger, and he doesn't want to take his anti-depression medication because frankly, it makes him feel psychotic. His neurologist says he is hard to medicate, so nothing seems to work and once it does work, it only works for a month and then has a reverse side effect because his body gets accustomed to it. We've tried Prozac, Celexa and another I can't remember. We don't want to go with anything stronger, because even the mild Celexa became a time bomb in his system.

Anger is the biggest problem with my son. Please pray for him because it consumes him so suddenly. This is unfortunately, very common with his TS.

I ask you also pray for his little sister, Chibs here, who has been a wonderful sister to him. Believe me, he has matured greatly, but through the teen years, when hormones and all the other stuff is uncontrollable, that part of his brain, since he has TS, is a mess. Chibs has been great and she has been a blessing to him. ^____^ Elric has also been great as he matures, being able to stop himself more often and surprising us with wonderful praise and concern. I know eventually he will break out of the teen years and the hormones won't be such a horrible trigger in his brain.

Some of you might think, well why doesn't he just control himself? Well, at 22 or 30 he probably will be able to because he won't have the stress of puberty, but as you all know this time brings about the most emotional outbreaks as it is, let alone with a severe neurological disorder to add to it. His ceratonin levels are already all messed up and once he turned 12 and started to enter the teen years, everything went downhill for him, and his emotions are dangling on a thin wire that's been cut.

I'm really opening up here and I hate to do this, because this is a private matter, but Josh has asked me for prayer, because he knows he can't do this alone anymore. He knows that God can help and so he gave me the go ahead to start a prayer thread for him.

I love my son so much and he is a wonderfully tender young man, who has just had a life that has been filled with constant disappointment, pain and the added TS, OCD, depression and every other thing he feels cursed with.

I'm sorry for those he has possibly hurt along the way and just ask you all to pray for him, because he is always hurting. T_T Our family just needs your prayers right now. Thank you.

PostPosted: Thu May 26, 2005 10:01 pm
by Azier the Swordsman
Definately.

PostPosted: Thu May 26, 2005 10:13 pm
by kazekami
I will add him to my prayer list.

PostPosted: Thu May 26, 2005 10:22 pm
by Shao Feng-Li
Of course. Sounds like God wants you to give up the medications and rely utterly completely on him. *shrug* Poor Elric. A lot of my relatives have like Alztimers and head conditions. I know waht he has is different than like old folks loosing their memory or wandering off down the street... but... It's all so stressful. Pray that God gives you all the wisodm to deal with it.

Tourette Syndrome
: a familial neurological disorder of variable expression that is characterized by recurrent involuntary tics involving body movements (as eye blinks or grimaces) and vocalizations (as grunts or utterance of inappropriate words), often has one or more associated conditions (as obsessive-compulsive disorder), is more common in males than females, and usually has an onset in childhood and often stabilizes or ameliorates in adulthood -- called also Tou.rette syndrome /-'ret-/

Very interesting... I've never heard if it before. Other family members are cursed (I hope that's not taken the wrong way.) with this too?

PostPosted: Thu May 26, 2005 10:33 pm
by KrescentMoon
I'll certainly be praying for Ekun. I have been since I learned about his having TS. Thus, I shall continue praying. All the best to you, Sarah, and especially Josh!

PostPosted: Thu May 26, 2005 10:33 pm
by true_noir_chloe
Before there are any misunderstandings of what Tourette Syndrome is, here is the link to the official website. We are members of TSA:

http://www.tsa-usa.org/

Go to that site and click on "What is TS?" Shao, I don't know where you got the information you placed on this thread, but it seems to be only a partial section of a larger text. I'm not upset, I just thought I'd rather have people know what it is from a source that is trusted, like TSA. Also, copralalia (outbursts of bad words) only affects around 33% of people with TS. If you want to know any more, pm me.

I do appreciate your prayers, and yes OCD and other neurological disorders have been found in both me and my husband's family.

PostPosted: Thu May 26, 2005 10:47 pm
by Mr. Rogers
will pray

PostPosted: Thu May 26, 2005 10:51 pm
by Otaku10
I will pray for your son and family.

PostPosted: Thu May 26, 2005 10:58 pm
by agasfas
Wow, sorry to hear that. I will most definitely keep your son in my prayers. I hope things get better.

PostPosted: Thu May 26, 2005 11:09 pm
by Stephen
You know I will be praying.

PostPosted: Thu May 26, 2005 11:28 pm
by Shao Feng-Li
true_noir_chloe wrote:Before there are any misunderstandings of what Tourette Syndrome is, here is the link to the official website. We are members of TSA:

http://www.tsa-usa.org/

Go to that site and click on "What is TS?" Shao, I don't know where you got the information you placed on this thread, but it seems to be only a partial section of a larger text. I'm not upset, I just thought I'd rather have people know what it is from a source that is trusted, like TSA. Also, copralalia (outbursts of bad words) only affects around 33% of people with TS. If you want to know any more, pm me.

I do appreciate your prayers, and yes OCD and other neurological disorders have been found in both me and my husband's family.

I know there's more. I just looked up a brief at http://www.m-w.com (Webster's official online dictionary.) Sorry, I didn't think I mgiht insult any or upset and I'm glad I didn't.

PostPosted: Thu May 26, 2005 11:29 pm
by Jasdero
I will. Without question. I hope there's a cure found for this, someday. ^__^ That would be absolutely wonderful. The people that he's hurt understand why it was so. It doesn't mean that by understanding, all of the cruel things a person was told wash away, but they do care, and they do sympathize. Sometimes it might not be apparent because their sensitivity to being put-down overrides it all, and instead of being a person offering comfort, they get offended and start defending themselves. They don't hate you; even after what you told them last. I hope you find your way, Echan. I hope that all of you are able to get through this tough time.

I'm sorry... I'm sorry I wasn't capable... I'm so sorry... You'll always be one of my most precious friends. Even now, I still think of you as a good friend. I failed you as the person who might be capable of helping you control your anger. I never hated you. I never thought you were incapable of doing something. When you told me you had Tourettes Syndrome, not once did I think "He's stupid." I never, ever, saw you as being unintelligent. Each time you said you were stupid, I felt helpless to really convince you otherwise. Insisting on it only seemed to aggravate it all... I couldn't take the arguments that happened multiple times a day. I never gave up on you. I stopped believing that I would be able to recover from the last argument, and the one before that, and the one before that. If I'm.. such a person that makes you mad so frequently, I believe it best to just.. end.

You really believe that I gave up to quickly on our friendship; that I didn't try hard enough. I haven't given up. I still wish things were alright. But I don't want this to happen all over again. I can't stand it. As for trying, I'm sorry that you didn't feel I did enough. There was so much pressure... I was constantly worried about what things I might say that would bring you to anger. I was scared of you. I couldn't tell what you might do next. I wasn't able to really be certain of what things I should and shouldn't say, because your reaction to them would change. I just.. My frustration overwhelmed me. I know that you were frustrated; perhaps even more than I because you always said that you beat yourself over whenever you hurt me. You also said that talking to me is hurtful to you, and since that's the case, I don't want to aggravate this anymore.

I don't think I have anything else to say that can be laid out here. So... ^__^ I'll never stop praying for you, Echan. Even if you hate me now for having not been able to handle all of this, I still love you dearly, my best buddy. Take care of yourself, and never forget that you are, and always will be, a cool dude.

PostPosted: Fri May 27, 2005 10:01 am
by Swordguy
i will be praying, deffently will be praying

PostPosted: Fri May 27, 2005 11:07 am
by Rogie
I'll certainly be praying for him, TNC, as well as you and your daughter.

PostPosted: Fri May 27, 2005 12:38 pm
by Doubleshadow
I'll be praying for you all.

PostPosted: Fri May 27, 2005 1:03 pm
by K. Ayato
Hi, true_noir_chloe. I remember you talked to me in great detail about this, and I'm glad you had the courage to request prayer on your son's behalf :). I will no doubt be praying for him, chibs, and you *hugs*.

PostPosted: Fri May 27, 2005 1:31 pm
by soul alive
that's a very tough thing to be dealing with. i will keep all of you in my prayers.

PostPosted: Fri May 27, 2005 1:49 pm
by EireWolf
I'm praying for all of you. *hugs*

PostPosted: Fri May 27, 2005 1:52 pm
by true_noir_chloe
Thanks everyone. I really do appreciate your prayers. *hugs all*

Sunako, I especially appreciate your friendship to Josh. *hug*

PostPosted: Fri May 27, 2005 2:53 pm
by Ingemar
I have a friend with Tourette's (and no, he never uttered bad words, but did have those wierd tics). I had no idea it would be so... damaging.

Of course I will supplicate.

PostPosted: Fri May 27, 2005 3:24 pm
by Lunis
Of course I will pray. Feel better soon Elric_kun! *hug*

PostPosted: Fri May 27, 2005 3:26 pm
by sunet
I will definitely pray

PostPosted: Fri May 27, 2005 4:52 pm
by Mave
Elric-kun and family, you know you have my support! *0*)// Will continue to pray about this!

PostPosted: Fri May 27, 2005 6:41 pm
by K. Ayato
I wish I knew what the exact cause of TS is, instead of all these theories and speculations in my psychology textbooks. Either way, all of you are still in my prayers :).

PostPosted: Fri May 27, 2005 7:12 pm
by Rachel
I will pray for you guys.

PostPosted: Fri May 27, 2005 9:11 pm
by Mr. SmartyPants
i understand very well what he's going through, ill pray for him

another reference here that i used
http://my.webmd.com/hw/mental_health/hw171179.asp

as of now TS isn't curable... but it can be supressed with clondine, catapress, haladol, etc.

i have it too, in case you were wondering...

PostPosted: Sat May 28, 2005 1:24 pm
by Spirit_Wolf8356
I'll definitely be praying for Josh and your family, Chloe. *hugs*

I know I wouldn't be able to offer much advice, but if you want someone to listen, I'm around.

PostPosted: Sat May 28, 2005 5:45 pm
by Anna Mae
I will be praying for your family!

PostPosted: Sat May 28, 2005 6:31 pm
by Mangafanatic
I'll certainly be praying over it. I can say that at fifteen I flew off the handle plenty and I didn't have any thing but hormones poking me around. Anyone can sympathize with that emotional strain, and I can only begin to imagine how difficult any sort of neurological condition would make the already difficult process of growing up. *Hugs Chibs, Elric, and Chloe*

I love you guys!

PostPosted: Sat May 28, 2005 6:45 pm
by Yumie
I'm sorry to hear about this, it's always very hard when God gives you an extra burden to shoulder for reasons that you can't understand, but hopefully His plan will become clear to your family soon, and I'll pray that He will heal Elric_kun and that things will at least get better for him soon! Hang in there! ;)